Lifelites has received an incredible donation of £141,423 from the Mark Benevolent Fund, which will change the lives of thousands of life-limited and disabled children across the country
The Mark Benevolent Fund is the official charity of The Grand Lodge of Mark Master Masons, a registered charity that began in 1868 as an efficient way to donate money to the charities of the Mark Master Masons.
Lifelites donates assistive technology to over 10,000 life-limited and disabled children in hospices across the country, and this vital funding will support a brand new project being launched by the charity this year – the Tech Trunk.
The Tech Trunk is a solution for Hospice at Home services across the country that deliver palliative and respite care for children out in the community. The portable trunks enable hospice staff to take the Lifelites technology with them wherever they go, giving children the opportunity to have access to life-changing technology in their own home.
The trunks will include accessible, portable technology such as a Virtual Reality Headset, specialist iPads, games consoles and an Eyegaze, which enables children to use a computer just with the movement of their eyes. All of this technology gives these children the opportunity to play, be creative, control something for themselves and communicate, for as long as it is possible.
This funding will also help Lifelites to donate Interactive Entertainment Hubs, Mobile Magic Carpets, and other technology as well as vital training for children’s hospice staff on how to use it.
Simone Enefer-Doy, Chief Executive of Lifelites, said: ‘Our small team works tirelessly to raise the funds we so desperately need, and to have this unbelievably generous gift from the Mark Benevolent Fund is a complete game-changer for Lifelites.
‘It will help us provide technology to thousands of children across the country, children who don’t have the same opportunities that we do. Every moment is precious, and thanks to this donation we can help these children and their families make the most of every second.’
Darren Coleman-Heald, Charities Manager at the Grand Lodge of Mark Master Masons, said: ‘We are delighted to have joined forces with Lifelites in this all-important project that reaches deep in to the heart of your community giving enjoyment and stimulation to life-limited and disabled children.
'Our 36,000 members will be pleased to know that their donations are being used wisely by helping those in need across the UK.’
Provinces across the country have helped raise in excess of £55,000 for children’s charity Lifelites by taking part in ‘Lift for Lifelites returns’ – a 3,000 mile road trip aimed at raising the charity’s profile, as well as the vital funds it needs to carry out its work
This is the second time the charity have staged this wacky fundraiser which sees its Chief Executive, Simone Enefer-Doy, travel to a landmark in every Province in England, Wales and some of the Crown Dependencies in just 15 days. To reach each of the 48 photoshoots, Simone asked Freemasons in every Province to give her a lift in a weird and wonderful variety of transport, and they didn’t disappoint.
Among her 80 lifts were a genuine Thai Tuk Tuk, a classic Rolls-Royce, a paddle steamer, a wartime motorcycle sidecar, a Lamborghini, no less than three steam trains and an electric tram, to name but a few. Famous sites visited on the trip included the beautiful Bleinheim Palace, the Heights of Abraham, Lake Windermere and the National Space Centre.
Simone said: ‘It was a real whistle stop tour and I’ve been blown away by the incredible generosity of Freemasons across the country; this event wouldn’t have been possible without them. After the success of last year, I couldn’t wait to see what everyone had come up with.
'It was wonderful to meet so many loyal supporters as well as lots of new friends along the way, and great to have the opportunity tell them more about Lifelites and other ways they could help us with our work for local children.’
The challenge has raised over £55,000 to date which will go towards the charity’s work donating and maintaining assistive technology for life-limited and disabled children in children’s hospices across the British Isles.
Simone explained: ‘This technology can be life-changing for these children. It helps them escape the confines of their conditions and do things they never thought possible, even things that we take for granted like playing a game with their brothers and sisters or telling their parents that they love them. We simply couldn’t do what we do without money raised from our supporters and we are very grateful.’
You can read about all the organisations who were involved in the challenge on the Lifelites website here.
After the huge success of last year’s event, Lifelites Chief Executive Simone Enefer-Doy is once again taking on an epic nationwide road trip to raise money for life-limited and disabled children in hospices
Simone left the office on Great Queen Street on the morning of 10 May 2019 in a London Fire Brigade BMW i3, kindly organised by the Metropolitan Grand Lodge of London. She was also accompanied by Widows Sons outriders and a classic Ronart.
Dubbed ‘Lift for Lifelites returns’, the 3,000 mile trip will see Simone visit a landmark in every Province in England and Wales in a variety of weird and wonderful modes of transport provided by Freemasons, Widows Sons and other volunteers.
Landmarks will include Bleinheim Palace, Goodwood and the National Space Centre, as well as some slightly quirkier venues such as the British Lawnmower Museum. Confirmed modes of transport so far include a Tuk Tuk, a steam train, a Lamborghini, a quadbike, a DeLorean, a classic Rolls Royce and many more.
All the money raised will go towards the charity’s work donating and maintaining life-changing technology to life-limited and disabled children in hospices across the British Isles. This technology gives them the opportunity to play be creative, control something for themselves and communicate, for as long as it is possible.
Simone said: 'We are a very small, but very hard working charity and are determined to do all that we can to impact the lives of children who don’t have the same opportunities that we do due to the confines of their condition. Every moment is precious for these children and their families, and we want to make sure they can make the most of every second. This is only possible with the support of the Provinces.
'We were absolutely blown away by the support we received last year. Provinces pulled out all the stops and we can’t thank them enough. Will this year be even bigger and better?'
A £5,000 donation by West Lancashire Freemasons to the charity Lifelites has allowed them to provide a package of interactive technology for patients at local children’s hospice Claire House in Liverpool
The grant to Lifelites was made during a national fund-raising event that saw the charity’s Chief Executive Simone Enefer-Doy call at Blackpool as part of a national tour.
Simone was joined on a recent visit to the hospice by Assistant Provincial Grand Master Derek Parkinson, Royal Arch Assistant to the Provincial Grand Principals’ Sam Robinson and local Liverpool Group Chairman Mark Matthews, who all had the opportunity to see the difference the technology is making in enhancing the lives of the children who are cared for at Claire House.
One of the technology packages they saw being used was the ‘Magic Carpet’, which is a fantastic sensory learning tool with the capacity to engage people of all ages and abilities. The system projects interactive games and images on to the floor that users can play with and control simply by moving on or over the projected image.
After watching baby Phoenix interacting with the ‘Magic Carpet’, Derek Parkinson remarked: 'It’s very humbling to see the dedication of the staff here at the hospice and we can’t sufficiently express our gratitude for the incredible work that they do.'
'Giving aid and support to charities within the local and wider community is central to Freemasonry. It’s marvellous to see at first hand what the money we have donated is achieving and we thank both LifeLites and Claire House for this opportunity.'
It’s the journey that matters
Via Rolls-Royce, camper van, horse and cart, speedboat and tandem bicycle, Lifelites chief executive Simone Enefer-Doy travelled 2,500 miles in two weeks to raise the profile of this hard-working charity
Providing life-changing assistive technology, Lifelites helps the 10,000 children and young people in hospices across the British Isles live their short lives to the full. On 25 May 2018, the charity’s chief executive, Simone Enefer-Doy, set off on an epic road, air and river trip to spread the word and raise funds.
The 2,500-mile challenge, called Lift for Lifelites, was to take in 47 famous landmarks in England and Wales in just 14 days. For each leg of the journey, Simone received a lift from Provincial supporters in an eclectic mix of transportation. After setting an initial target of raising £50,000 for Lifelites, the total now stands at over £104,000. Simone says she has been astounded at the support and generosity she encountered as she travelled around the country.
‘Never in my wildest dreams did I imagine that so many people would come out to meet me on my journey and support my challenge. We have received a terrific welcome wherever we have gone, and it really spurred me on to continue whenever I felt myself flagging. I would like to thank everyone – drivers, donors and venues – for helping to make Lift for Lifelites happen. We couldn’t have done it without you.’
RW Bro David Hagger, Provincial Grand Masterfor Leicestershire and Rutland Freemasons, visited the headquarters of Lifelites on Wednesday 15th December 2016 for a demonstration of some of the equipment that is provided by the charity to children’s hospices
Lifelites began as project within the Royal Masonic Trust for Girls and Boys and became an independent charity in 2006. It provides specialist entertainment, educational and assistive technology packages to over 9,000 children and young people with life-limiting, life-threatening and disabling conditions in children's hospices including Rainbows Hospice for Children and Young People based in Loughborough.
Caroline Powell, Lifelites Training Manager, drives the Lifelites' training strategy to ensure all of the donated equipment is utilised to its full potential by hospice staff was delighted to demonstrate some of the equipment including Eyegaze which makes a computer accessible for disabled young people. Through a sensor, Eyegaze allows them to track their eye movements enabling them to move the cursor around the screen. Children whose carers and families thought they were unable to communicate, can now do so with this magical technology – they can tell their carers what they would like to eat or drink and can even, for the first time, tell their parents that they love them.
Simone Enefer-Doy, Chief Executive of Lifelites said: 'We are hoping to provide Rainbows in Leicestershire with another new package of our latest technologies in 2018 and will be fundraising for that project in the New Year.'
National children’s charity Lifelites has donated a package of specialist technologies for children at Zoë’s Place Baby Hospice in Coventry
The children who visit the hospice will be able to use the equipment to play games, be creative and communicate with their families, something which may be impossible for them to do otherwise.
The package of equipment and services – which is worth £50,000 over its four year lifespan – was donated completely free of charge by Lifelites. The charity also provides ongoing technical support and training for the hospice staff.
The charity was able to donate the equipment due to the generosity of donors. For this project, money was donated by the Warwickshire Freemasons, as well as the Khoo Teck Puat Foundation, GamesAid, Microsoft and Children with Cancer UK.
One of the pieces of equipment donated was a Magic Carpet. This is a portable box which projects an image on to the floor, a wheelchair or a bed, which children can interact with. This technology gives them the chance to escape the confines of their condition and play one of the many games or animations, such as playing football or splashing in the sea.
The children also received an Eyegaze. This is a piece of equipment which allows those with limited mobility to control a computer using just their eyes. By using the Eyegaze, children who struggle to communicate with their family and their carers are able to do so – often for the first time.
Other items donated include iPads, cameras and touchscreen computers along with lots of games and other software specially designed to be accessible for children with disabilities.
After two days of staff training, families, donors and hospice staff gathered to celebrate the occasion and to officially hand the equipment over to the children at the hospice.
Clare Walton, senior care assistant at Zoë’s Place said: 'The eye gaze equipment will revolutionise the experience that many of our children will have here at Zoë’s Place Baby Hospice. It has already been fantastic to see a glimpse of their full potential and it has been wonderful for the parents to witness just what their children are capable of. It is incredible for the staff and parents to be able to communicate with the children on a far deeper level than we have been able to without this equipment.
'The equipment has so many applications for us and a child can use it for leisure time, completing school work and general communication. It is very easy and intuitive to use and we are currently rolling out the training to all of our staff. We are so thrilled to have this and cannot thank everyone enough who made it happen.'
Simone Enefer-Doy, Chief Executive of Lifelites said: 'We are thrilled to be able to provide equipment for the children at Zoë’s Place who have life-limiting, life-threatening and disabling conditions. The magical technology we have donated can be used to play, to be creative and communicate, and enrich the lives of these children and their families, for as long as is possible. We couldn’t have provided this package if it wasn’t for the generosity of our donors, so for this we are incredibly grateful.'
Lifelites has donated equipment to every children’s hospice in the British Isles over the last 16 years, and continues to provide new technology and ongoing support to ensure that children in hospices have unlimited possibilities.
Lifelites charity announces youngest celebrity Patron
Lifelites has announced their latest and youngest Patron, Britain’s Got Talent 2016 finalist and Golden Buzzer winner, Jasmine Elcock. Jasmine, 14, is the daughter of a London Freemason
Lifelites – recently recognised for their good work with technology as a 2015 Nominet Trust 100 winner – is the only charity to provide assistive and inclusive technology packages for terminally ill and disabled children in every baby and children’s hospice across the British Isles. The package of technologies is both donated and maintained by the charity and includes items like special iPad communication packages, Eyegaze eye-operated computers and interactive magic carpets.
Talented young singer Jasmine Elcock, who is from Dagenham, Essex, was a favourite amongst this year’s Britain’s Got Talent viewers and especially with presenters Ant and Dec who chose Jasmine as their Golden Buzzer winner. She wowed the judges with her beautiful performances and her charm and likeability shone through, even impressing BGT boss Simon Cowell.
Jasmine visited Lifelites with her father Julian Elcock at their offices to learn more about their work with children’s hospices. Jasmine’s father is a member of Fortis Green Lodge No. 5145 and has been a Freemason for over eight years. He has had some involvement with Lifelites some years ago representing the charity in the Lord Mayor’s Parade. As a new Patron, Jasmine will help to raise awareness of Lifelites’ work in children’s hospices. She will support the charity in a variety of ways, including visiting children’s hospices and backing their fundraising campaigns. Lifelites is extremely grateful for her support and is delighted to welcome young Jasmine as their newest advocate.
Jasmine said: 'My life has been transformed through music making and it is a great joy to be able to express myself through singing; I’m delighted to see the magical technology that Lifelites provides can offer similar transformational experiences for terminally ill and disabled children in hospices. I am proud and privileged to help raise awareness of the work of Lifelites and am looking forward to being a Patron of the charity.'
Simone Enefer-Doy, Chief Executive of Lifelites, said: 'We are so excited that this lovely young woman has agreed to lend Lifelites her support. Jasmine will be a great advocate for Lifelites. She is likeable and has won the nation’s hearts through Britain’s Got Talent so she’ll be good at attracting attention to our great cause. We’re really looking forward to working with Jasmine in the near future and welcoming her on board #TeamLifelites.'
Jasmine Elcock joins a star studded line-up of Lifelites Patrons which includes Dame Esther Rantzen, Rick Wakeman, Peter Bowles, Joe Pasquale, Anita Dobson and Lord Cadogan (among others).
Lifelites is pleased to announce that they have been shortlisted in the Digital Leaders 100 Awards 2016 in the category Charity Digital Leader of the Year. 500 projects have been nominated and Lifelites made the final 100. The charity are up against nine other organisations in the same category. Lifelites was also a 2015 Nominet Trust 100 winner for their good work with technology.
Lifelites is the only charity to provide assistive and inclusive technology packages for life limited and disabled children in every baby and children’s hospice across the British Isles.
Simone Enefer-Doy, Chief Executive of Lifelites, said: 'It’s fantastic news that our charity has been shortlisted in the category Charity Digital Leader of the Year. We provide these magical technologies for the children to enhance their short lives and give them opportunities they may not otherwise have. It’s a voting process and we need as many votes as possible to win the award in our category so, if you're inspired by the work we do providing technology for terminally ill and disabled children in hospices please click on the link and vote for us. Please forward this information to your networks, tweet and share this news on your Facebook page to help us spread the word about voting for Lifelites.'
Voting closes on the 27th May 2016
Voting link: http://www.digileaders100.com/vote/#charity
Dame Esther Rantzen in Lifelites video
The national children’s technology charity Lifelites has launched a fundraising video campaign featuring its latest patron, television presenter and broadcaster Dame Esther Rantzen.
Last year Lifelites was a 2015 Nominet Trust 100 winner, and is the only charity to provide assistive and inclusive technology packages for terminally ill and disabled children in hospices across the British Isles.
Dame Esther is featured in Lifelites’ latest awareness video, shown speaking to staff and young people at children’s hospices about the impact of the charity’s donation.