Tackling epilepsy: Epilepsy Society receive £38k grant from Grand Charity

Wednesday, 13 June 2012

The Epilepsy Society has received a £38,000 grant from the Grand Charity to help fund research

Professor Sanjay Sisodiya, the society’s head of genetics, said, ‘I am grateful to The Freemasons’ Grand Charity for this generous grant. Genetics research is very important, with changes such as deletions and duplications in a person’s genome recently emerging as important risk factors for epilepsy.’

Buckinghamshire Provincial Grand Master Gordon Robertson and Provincial Grand Secretary Derek Watts visited the charity’s site at Chalfont St Peter. ‘Sometimes, such changes have led to the identification of a particular gene, alterations in which are a direct cause of the epilepsy. Over time the understanding that this brings may prove to be the best way to find new treatments for epilepsy,’ said Professor Sisodiya.

For more information on the Epilepsy Society please visit www.epilepsysociety.org.uk

Letters to the editor - No. 20 Winter 2012

 

Valuing care 

 

Sir,

 

I greatly appreciated your report in the autumn issue on Epilepsy Society. The support that has been given by the Grand Charity is immeasurable. My son, a research scientist, was diagnosed while completing his PhD. However, he went on to research stem cell analysis, cancer of the brain, Alzheimer’s, and epilepsy in the US and Germany. Unfortunately, employment in the UK proved difficult, which emphasises a point made in the article. As parents, although aware of occasional seizures we were never totally aware of the traumatic consequences that could happen at any time. It is this concept that the general public are not aware of.


My son passed away in his sleep three years ago from sudden unexpected death from epilepsy (SUDEP). May I take this opportunity of offering my sincere thanks and gratitude to the generosity of Grand Lodge, individual lodges and members who have supported the charity, which is totally independent of the NHS system and reliant on individual contributions.


Sydney Pycroft, Breaksea Lodge, No. 5358, Barry, South Wales


 

 

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